Without first-hand knowledge of what it takes to raise and educate a
child with special needs, the following accomplishments might seem
trivial to you, but I assure you that when my daughter accomplishes
something as mundane as coming out of the restroom without being
told to, it is indeed a cause for celebration! My daughter is a
physically healthy 33-year-old woman living in the head of someone at
least two decades younger than her body.
Learning to be appropriate when out in public is
something every parent works on with his or her small children. To teach
them to use their ‘inside voice’, to not speak to - let alone touch -
strangers in the store, to not wander off, to not say inappropriate
comments in public places, just to name a few. As a parent of a special
child, these areas are never really completed; they are on going,
forever tasks. The staff at EGACT understands this and has provided
endless energy to continue to find methods that work for Traci, so she
can be safe and accepted in the community.
Acceptance is critical for an adult with special
needs. When Traci was very young, I recall how others would look (and
sometimes stare) at her because she ‘talked funny’, or was too loud for
the environment, or made a movement with her body that clearly wasn’t
‘normal’. As a young child, those actions did not seem to linger or
cause others to be uncomfortable; however, as she has grown and matured,
it clearly invades the comfort zone of others to see a 5’7" woman act
like a child. The EGACT program works diligently to expose and educate
the Elk Grove community to the real world of differently-abled citizens.
Traci and her classmates have become ‘known faces’ to
the employees at Bel Air market; WalMart; Target; Home
Depot; and so many other retail stores, as well as various food
venues and, of course, the Dollar Tree in Elk Grove. EGACT’s crusade to
provide opportunities in the community has helped Traci learn the value
of appropriateness and given her acquaintances in the working world.
When she and I go shopping on the weekends, it never ceases to amaze me
that she and store employees greet each other just like I would greet a
friend I happen to run into while shopping - again, a trivial moment?
Not for me.
Traci used to be deathly afraid of dogs. Why? I have never been able
to say. She was never bitten, but a serious fear was apparent. Part of
her individual program plan included placing Traci at the SPCA to work
her fears into a healthy and manageable level. Today she controls her
emotions and is almost comfortable around animals. Part of this
accomplishment is due to Homer, the Golden Retriever service dog that is
also a staff member at EGACT.
Do you remember the first time your daughter asked to
‘have a sleep over’ with her new best friend? Or when she prepared for
her first dance, or was excited about venturing off to college, or got
engaged? I remember feeling sad when I realized that Traci will not have
those experiences, at least not in the traditional way. Once you go
beyond feeling sad or hurt or whatever emotion it is that you feel, you
realize that those events are simply traded in for other, just as
important events in your special child’s life.
EGACT’s commitment to fulfilling the needs and rights
of every one of the 140 consumers attending their program is apparent by
their attention to detail. Traci did have her first dance to prepare
for, an annual event that has all the excitement and fanfare of any prom
night, is provided through the day program. The staff participate in
every aspect to make this not only a fun and en exciting event, but use
the event environment to teach social and physical interactions. One
would not think that going to a dance is part of an educational program
plan, but where else can my daughter (as well as others) learn how to
acceptably conduct themselves in an environment that comes normally to
others.
Do you remember being thrilled when your son or
daughter carried on his or her first intelligible conversation with you?
I have had the pleasure of reliving that thrill over and over again, in
the many stages of progression, as Traci has learned to put words into a
meaningful context. She started with one word, as all children do;
however, she remained in a one-word planet for many years. With the
persistence and dedication of her teachers, teacher assistants and
speech specialists, she can string several words together and most of
the time come up with an ‘almost’ conversation! This simple undertaking
has brought me to tears on more than one occasion, because for Traci,
nothing is really ‘simple’. It takes major effort, concentration and
patience from those teaching; those listening and, most of all, from
Traci to produce what the rest of the world takes for granted.
You might be thinking…so where is the ‘academic’ part
of your daughter’s education happening? Again, good question. There came
a point early in time that we realized, Traci won’t be making decisions
based on algebra or science or history, but rather will be making
decisions on the simple tasks of life - eating, staying safe, dressing,
acceptable socialization, and basic life skills. For Traci, learning to
count, or do her ABC’s is not our first priority. Does that mean EGACT
and we don’t continue with the effort? Absolutely not! There are basic
learning drills that are provided daily, but the emphasis is based on
reality, not on what the academic test score will produce. And of
course, there are all levels of abilities, so while Traci may not have
academics in the top five targets of her program goals, academics may be
in another consumers program plan.
How has Traci been changed by attending EGACT? The
answer is just that - ’changed’, because a parent of a special needs
child dreams of ‘change’, of growth, of learning. We understand how
precious those ‘small steps’ really are and bask in the light with every
‘change’ that comes in our child’s life.
Thank you EGACT for the ‘change’ you make happen in
the lives of so many. The professional, compassionate and loyal staff of
this program is a special group of individuals, and each deserves
praise. The Elk Grove community needs to know how lucky it is to have
such a valuable and highly recognized program within its city limits.